{"id":22506,"date":"2022-08-27T07:57:42","date_gmt":"2024-01-19T20:07:53","guid":{"rendered":"https:\/\/statichtml.fun\/rare-disease-week-2024\/"},"modified":"2022-08-27T07:57:42","modified_gmt":"2024-01-19T20:07:53","slug":"rare-disease-week-2024","status":"publish","type":"post","link":"https:\/\/werelivingwell.com\/hdtgy-rare-disease-week-2024-sakbg-photos\/","title":{"rendered":"Rare Disease Week 2024"},"content":{"rendered":"<div class=\"cd5c096581fd5fc23b44a4969c1e3c2e\" data-index=\"1\" style=\"float: none; margin:10px 0 10px 0; text-align:center;\">\n<div style='text-align: center;'>\r\n<script type=\"text\/javascript\">\r\n\tatOptions = {\r\n\t\t'key' : '0a1f35073c594f712b44ac459670782f',\r\n\t\t'format' : 'iframe',\r\n\t\t'height' : 250,\r\n\t\t'width' : 300,\r\n\t\t'params' : {}\r\n\t};\r\n\tdocument.write('<scr' + 'ipt type=\"text\/javascript\" src=\"\/\/www.profitablecreativeformat.com\/0a1f35073c594f712b44ac459670782f\/invoke.js\"><\/scr' + 'ipt>');\r\n<\/script>\r\n<\/div>\r\n\n<\/div>\n<p><b>rare disease week 2024<\/b> &#8211; Ireland is now on track to practically eliminate cervical cancer by 2040, making it a rare disease, it was claimed today. . Kaylee and Jake Massey&#8217;s daughter Poppy died in April after battling TBCD, a rare genetic disorder that Kaylee says &#8220;most geneticists have never even heard of.&#8221; Kaylee opens up to PEOPLE about Poppy&#8217;s  .<\/p>\n<h2>rare disease week 2024<\/h2>\n<p align=\"center\"> <a title=\"Rare Disease Week   EveryLife Foundation for Rare Diseases\"><img decoding=\"async\" src=\"https:\/\/everylifefoundation.org\/wp-content\/uploads\/2021\/12\/Rare-Disease-Week-Logo-1-300x250.png\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/everylifefoundation.org\">everylifefoundation.org<\/a><\/p>\n<h2>You Should Represent SYNGAP1 During Rare Disease Week on Capitol <\/h2>\n<p align=\"center\"><a title=\"You Should Represent SYNGAP1 During Rare Disease Week on Capitol \"><img decoding=\"async\" src=\"https:\/\/i0.wp.com\/assets-global.website-files.com\/5fa7dd058c8d62f8d5b9cd0c\/652d97dc17104a09f7b44908_XgGsqiaNGqqMCEhtHzFEqQ1E6UHkyQDaOSNajuZLA3S9QQl6hpq3k1MegmLq2Ufn8M5P7fABf-1bKQYWBcZ_HicQ8GyCi6oJ66PNAvLnUUeY7vyXoEM617uaA2DfFlgLD6oEFEttDLpKunY04kCaOTk.png?ssl=1\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/curesyngap1.org\" rel=\"nofollow\">curesyngap1.org<\/a><\/p>\n<h2>Events Schedule   EveryLife Foundation for Rare Diseases<\/h2>\n<p align=\"center\"><a title=\"Events Schedule   EveryLife Foundation for Rare Diseases\"><img decoding=\"async\" src=\"https:\/\/everylifefoundation.org\/wp-content\/uploads\/2021\/12\/Rare-Disease-Week-Logo-1030x858.png\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/everylifefoundation.org\" rel=\"nofollow\">everylifefoundation.org<\/a><\/p>\n<h2>Rare Disease Week on Capitol Hill   Sick Cells<\/h2>\n<p align=\"center\"> <a title=\"Rare Disease Week on Capitol Hill   Sick Cells\"><img decoding=\"async\" src=\"https:\/\/sickcells.org\/wp-content\/uploads\/2023\/11\/Rare-Disease-Week.png\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/sickcells.org\" rel=\"nofollow\">sickcells.org<\/a><\/p>\n<h2>Rare Disease Legislative Advocates | Washington D.C. DC<\/h2>\n<p align=\"center\"> <a title=\"Rare Disease Legislative Advocates | Washington D.C. DC\"><img decoding=\"async\" src=\"https:\/\/lookaside.fbsbx.com\/lookaside\/crawler\/media\/?media_id=100064558544931\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/www.facebook.com\" rel=\"nofollow\">www.facebook.com<\/a><\/p>\n<h2>2024 Rare Disease Advocacy Week | Hydrocephalus Association<\/h2>\n<p align=\"center\"> <a title=\"2024 Rare Disease Advocacy Week | Hydrocephalus Association\"><img decoding=\"async\" src=\"https:\/\/www.hydroassoc.org\/wp-content\/uploads\/2023\/11\/Advocacy-Week.png\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/www.hydroassoc.org\" rel=\"nofollow\">www.hydroassoc.org<\/a><\/p>\n<h2>Rare Disease Legislative Advocates | Washington D.C. DC<\/h2>\n<p align=\"center\"> <a title=\"Rare Disease Legislative Advocates | Washington D.C. DC\"><img decoding=\"async\" src=\"https:\/\/lookaside.fbsbx.com\/lookaside\/crawler\/media\/?media_id=1853695851753370&amp;get_thumbnail=1\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/www.facebook.com\" rel=\"nofollow\">www.facebook.com<\/a><\/p>\n<h2>Hydrocephalus Association on LinkedIn: Join us on Capitol Hill for <\/h2>\n<p align=\"center\"> <a title=\"Hydrocephalus Association on LinkedIn: Join us on Capitol Hill for \"><img decoding=\"async\" src=\"https:\/\/media.licdn.com\/dms\/image\/D5610AQF9s4KU9VGA1w\/image-shrink_1280\/0\/1699392915664?e=2147483647&amp;v=beta&amp;t=xHLMCGeXsi_ZHEd9UgzPHt3BwFFdcliKDlaMorW0vUA\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/www.linkedin.com\" rel=\"nofollow\">www.linkedin.com<\/a><\/p>\n<h2>You Should Represent SYNGAP1 During Rare Disease Week on Capitol <\/h2>\n<p align=\"center\"> <a title=\"You Should Represent SYNGAP1 During Rare Disease Week on Capitol \"><img decoding=\"async\" src=\"https:\/\/i0.wp.com\/assets-global.website-files.com\/5fa7dd058c8d62f8d5b9cd0c\/652d97dfc38b81474c8bac2f_fmXcteMksisIz1XTW1XpApToODluWdsxqpZwzBm-xgI_SmcoJkYKcki8HbnKfDX2pVfGUPLbckvZFinVPBmlxSKsG_WXUO6gRLJAIqQaVA0NI3hG_MiVuYNqY-j4FGoyNkYSJw__LBHz0ixNhCYvBJE.png?ssl=1\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/curesyngap1.org\" rel=\"nofollow\">curesyngap1.org<\/a><\/p>\n<h2>Homocystinuria   HCU Network America<\/h2>\n<p align=\"center\"> <a title=\"Homocystinuria   HCU Network America\"><img decoding=\"async\" src=\"https:\/\/lookaside.fbsbx.com\/lookaside\/crawler\/media\/?media_id=397278716296558\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/www.facebook.com\" rel=\"nofollow\">www.facebook.com<\/a><\/p>\n<p><b>rare disease week 2024 Rare Disease Week   EveryLife Foundation for Rare Diseases<\/b>:   Plus, 83% of patients didn\u2019t need a blood transfusion after 12 weeks, while 78% of patients could say the  CEO of AstraZeneca\u2019s rare disease subsidiary Alexion, said in a press release. Alexion has  . Use precise geolocation data and actively scan device characteristics for identification. This is done to store and access information on a device and to provide personalised ads and content, ad and  . <\/p>\n\n<div style=\"font-size: 0px; height: 0px; line-height: 0px; margin: 0; padding: 0; clear: both;\"><\/div>","protected":false},"excerpt":{"rendered":"<p>rare disease week 2024 &#8211; Ireland is now on track to practically eliminate cervical cancer by 2040, making it a rare disease, it was claimed today. . Kaylee and Jake Massey&#8217;s daughter Poppy died in April after battling TBCD, a rare genetic disorder that Kaylee says &#8220;most geneticists have never even heard of.&#8221; Kaylee opens [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[57],"tags":[],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/posts\/22506"}],"collection":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/comments?post=22506"}],"version-history":[{"count":0,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/posts\/22506\/revisions"}],"wp:attachment":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/media?parent=22506"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/categories?post=22506"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/tags?post=22506"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}