{"id":22507,"date":"2023-07-23T07:57:42","date_gmt":"2024-01-19T20:07:54","guid":{"rendered":"https:\/\/statichtml.fun\/rare-disease-day-2024\/"},"modified":"2023-07-23T07:57:42","modified_gmt":"2024-01-19T20:07:54","slug":"rare-disease-day-2024","status":"publish","type":"post","link":"https:\/\/werelivingwell.com\/hdtgy-rare-disease-day-2024-sakbg-photos\/","title":{"rendered":"Rare Disease Day 2024"},"content":{"rendered":"<div class=\"cd5c096581fd5fc23b44a4969c1e3c2e\" data-index=\"1\" style=\"float: none; margin:10px 0 10px 0; text-align:center;\">\n<div style='text-align: center;'>\r\n<script type=\"text\/javascript\">\r\n\tatOptions = {\r\n\t\t'key' : '0a1f35073c594f712b44ac459670782f',\r\n\t\t'format' : 'iframe',\r\n\t\t'height' : 250,\r\n\t\t'width' : 300,\r\n\t\t'params' : {}\r\n\t};\r\n\tdocument.write('<scr' + 'ipt type=\"text\/javascript\" src=\"\/\/www.profitablecreativeformat.com\/0a1f35073c594f712b44ac459670782f\/invoke.js\"><\/scr' + 'ipt>');\r\n<\/script>\r\n<\/div>\r\n\n<\/div>\n<p><b>rare disease day 2024<\/b> &#8211; \u2018It was like getting hit by a train,\u2019 Nicola recalled Motor Neurone Disease is a rare condition that progressively damages  Now, Nicola is taking it one day at a time. Nicola is a lifelong  . Kaylee and Jake Massey&#8217;s daughter Poppy died in April after battling TBCD, a rare genetic disorder that Kaylee says &#8220;most geneticists have never even heard of.&#8221; Kaylee opens up to PEOPLE about Poppy&#8217;s  .<\/p>\n<h2>rare disease day 2024<\/h2>\n<p align=\"center\"> <a title=\"Rare Disease Day 2024 | Genetic Alliance UK\"><img decoding=\"async\" src=\"https:\/\/geneticalliance.org.uk\/wp-content\/uploads\/2023\/04\/RARE-DISEASE-DAY.png\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/geneticalliance.org.uk\">geneticalliance.org.uk<\/a><\/p>\n<h2>Rare Disease Day at NIH 2024   National Organization for Rare <\/h2>\n<p align=\"center\"><a title=\"Rare Disease Day at NIH 2024   National Organization for Rare \"><img decoding=\"async\" src=\"https:\/\/rarediseases.org\/wp-content\/uploads\/2023\/12\/NCATS_RDD_LogosStacked_2024_Blue.jpg\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/rarediseases.org\" rel=\"nofollow\">rarediseases.org<\/a><\/p>\n<h2>Countdown To Rare Disease Day 2024 | VASCERN<\/h2>\n<p align=\"center\"><a title=\"Countdown To Rare Disease Day 2024 | VASCERN\"><img decoding=\"async\" src=\"https:\/\/vascern.eu\/app\/uploads\/2023\/11\/countdown-to-rare-disease-day-2024.png\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/vascern.eu\" rel=\"nofollow\">vascern.eu<\/a><\/p>\n<h2>Rare Disease Day<\/h2>\n<p align=\"center\"> <a title=\"Rare Disease Day\"><img decoding=\"async\" src=\"https:\/\/lookaside.fbsbx.com\/lookaside\/crawler\/media\/?media_id=7207426109274271\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/www.facebook.com\" rel=\"nofollow\">www.facebook.com<\/a><\/p>\n<h2>Rare Disease Day 2023 | Sustainable Development Goals   Resource <\/h2>\n<p align=\"center\"> <a title=\"Rare Disease Day 2023 | Sustainable Development Goals   Resource \"><img decoding=\"async\" src=\"https:\/\/sdgresources.relx.com\/sites\/default\/files\/styles\/sus_content_main_image\/public\/images\/special-issue\/logo_rare_disease_day_0.png?itok=N4ZRNYCh\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/sdgresources.relx.com\" rel=\"nofollow\">sdgresources.relx.com<\/a><\/p>\n<h2>Rare Disease Day<\/h2>\n<p align=\"center\"> <a title=\"Rare Disease Day\"><img decoding=\"async\" src=\"https:\/\/lookaside.fbsbx.com\/lookaside\/crawler\/media\/?media_id=100064848991758\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/www.facebook.com\" rel=\"nofollow\">www.facebook.com<\/a><\/p>\n<h2>Rare Disease Day 2024   Rare Disease UK<\/h2>\n<p align=\"center\"> <a title=\"Rare Disease Day 2024   Rare Disease UK\"><img decoding=\"async\" src=\"https:\/\/www.raredisease.org.uk\/wp-content\/uploads\/sites\/7\/2023\/12\/Website-banner-1920-%C3%97-650-px.png\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/www.raredisease.org.uk\" rel=\"nofollow\">www.raredisease.org.uk<\/a><\/p>\n<h2>Rare Disease Day<\/h2>\n<p align=\"center\"> <a title=\"Rare Disease Day\"><img decoding=\"async\" src=\"https:\/\/lookaside.fbsbx.com\/lookaside\/crawler\/media\/?media_id=760888026082824\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/www.facebook.com\" rel=\"nofollow\">www.facebook.com<\/a><\/p>\n<h2>Join the Countdown: Rare Disease Day 2024 Starts Now   Rare <\/h2>\n<p align=\"center\"> <a title=\"Join the Countdown: Rare Disease Day 2024 Starts Now   Rare \"><img decoding=\"async\" src=\"https:\/\/www.rarediseaseday.org\/wp-content\/uploads\/Rare-Disease-Day-Official-Video-2024-thumbnail-1568x882.jpg\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/www.rarediseaseday.org\" rel=\"nofollow\">www.rarediseaseday.org<\/a><\/p>\n<h2>Public meeting: FDA Rare Disease Day 2024   03\/01\/2024 | FDA<\/h2>\n<p align=\"center\"> <a title=\"Public meeting: FDA Rare Disease Day 2024   03\/01\/2024 | FDA\"><img decoding=\"async\" src=\"https:\/\/www.fda.gov\/files\/styles\/main_image_medium\/public\/RDD%202024_Web%20Graphic_FINAL-01.png?itok=CknGkTOI\" width=\"100%\" height=\"100%\"><\/a> <\/p>\n<p>Source : <a href=\"https:\/\/www.fda.gov\" rel=\"nofollow\">www.fda.gov<\/a><\/p>\n<p><b>rare disease day 2024 Rare Disease Day 2024 | Genetic Alliance UK<\/b>:   A McGill-led team of researchers have made an important discovery shedding light on the genetic basis of a rare skeletal disorder. The study,  . CRISPR collaboration combines expertise from three UC schools to scale treatment for diseases that industry has largely passed by \u2014 until now. . <\/p>\n\n<div style=\"font-size: 0px; height: 0px; line-height: 0px; margin: 0; padding: 0; clear: both;\"><\/div>","protected":false},"excerpt":{"rendered":"<p>rare disease day 2024 &#8211; \u2018It was like getting hit by a train,\u2019 Nicola recalled Motor Neurone Disease is a rare condition that progressively damages Now, Nicola is taking it one day at a time. Nicola is a lifelong . Kaylee and Jake Massey&#8217;s daughter Poppy died in April after battling TBCD, a rare genetic [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[57],"tags":[],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/posts\/22507"}],"collection":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/comments?post=22507"}],"version-history":[{"count":0,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/posts\/22507\/revisions"}],"wp:attachment":[{"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/media?parent=22507"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/categories?post=22507"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/werelivingwell.com\/wp-json\/wp\/v2\/tags?post=22507"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}